Evidence-Based Programs for CMC and their Families/Caregivers
Dignity Care -
Meets urgent practical needs to keep families close and strong during their child’s medical crisis: Food, clothing, travel,
housing, and medical expenses critical to the child’s needs and not covered by insurance.
Family Strong -
Cultivates family resilience by building capacity and coping skills; maximizing the family’s quality of life, strengthening their
bonds and restoring their hope: Counseling, family enrichment, emotional and peer support, financial advisement,
insurance and benefits coaching.
Wrap Around Care -
A powerful team of highly trained professionals who partner with the family to provide early intervention healthcare, emotional
and spiritual support to sustain the family for the long haul: Comprehensive healthcare coordination, social work services and
Hope House -
A respite facility offering excellence in CMC care to provide families the time and space they need to rest and be refreshed as
they endure the challenges and stressors of their child's medical crisis.
Legacy Care -
Bequests, annuities, estates and insurance gifts to ensure sustainability and care for CMC with elderly or decided parents/caregivers.
Everyday at Will's Hope
- We empower families to endure and overcome despair during their child’s medical crisis
- We foster healing with evidence-based programs that keep families close, strong and hopeful
- We fight to eliminate their stress, worry, confusion and burden to maximize their quality of life
- We hope you will join us!
Assessment Tools and References
Zarit Burden Interview (ZBI) assessment tool
Hérbert, R., G. Bravo, and M. Préville. 2000. Reliability, Validity, and Reference Values of the Zarit Burden Interview for Assessing Informal Caregivers of Community-Dwelling Older Persons with Dementia. Canadian Journal on Aging 19:494-507.
Lai, D. W. L. 2007. Validation of the Zarit Burden Interview for Chinese Canadian Caregivers. Social Work Research 31:45-53.
Logeais, T. 2017. Assessing and Addressing Family Caregiver Burden: Palliative Care Social Work Perspective. Master of Social Work Clinical Research Papers. 764. http://sophia.stkate.edu/msw_papers/764
Zarit, S. H., K. E. Reever, and J. Back-Peterson. 1980. Relatives of the Impaired Elderly: Correlates of Feelings of Burden. The Gerontologist 20:649-655.
Financial Stress Questionnaire
Conduct Problems Prevention Research Group. 2018. Financial Stress Questionnaire. Fast Track Data Center. fasttrackproject.org
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